#478 Health Care Innovation Working Group (HCIWG) Webinar - Care at Home for Individuals Living with Dementia

L'événement va commencer : le 07 Avr 13:00 heure de l’est
Et se terminera : le 07 Avr 14:30 heure de l’est

Click here for the AUDIO RECORDING / Cliquez ici pour les instructions d'accès

Click here for the POWERPOINT PRESENTATION in ENGLISH / Cliquez ici pour la présentation powerpoint

Click here for the POWERPOINT PRESENTATION in FRENCH / Cliquez ici pour la présentation powerpoint en français

Recognizing the need to learn from each other in addressing the needs of persons with dementia and their care partners, Canada’s Premiers established a Seniors’ Care Theme Group as part of the Council of the Federation’s Health Care Innovation Working Group (HCIWG).

In May 2015, the Seniors’ Care Theme Group hosted a webinar that focused on dementia caregiver support, which was then followed by an in-person forum (Supporting Canadians Living with Dementia), that was part of the pre-conference events for the October 2015 Canadian Association on Gerontology’s Annual Meeting.

As the final stage of the three-part dementia symposium, the Seniors’ Care Theme Group is pleased to host a webinar focused on care at home for individuals living with dementia, on Thursday, April 7, 2016. This webinar is open to all interested participants. The first hour of the webinar will include guest speakers with Q & A time after the presentation.

For more information on HCIWG and the Seniors’ Care Theme Group, please follow the link.


Presentation title: Care at Home for a Family Member with Dementia: A Discussion of Research in Progress

ChristineCeci-PhotoChristine Ceci
Christine completed a PhD in nursing from the University of Calgary, and then held a SSHRC postdoctoral fellowship at the University of Victoria. Following her fellowship, Christine accepted a position with the Faculty of Nursing at the University of Alberta, where she is currently an associate professor. Christine’s work includes empirical and theoretical studies concerned with the organization of care practices for frail older people, and is currently focused on the situations of families in which one member has dementia. This project began with a field study of home care case management practices, and has resulted in a series of papers that work to articulate a more complete account of the interests that organize everyday life and care. Elements of this research were published in Perspectives on Care at Home for Older People, an international, multidisciplinary collection of papers. Christine is currently the holder of a three-year CIHR grant focused on Delaying Institutionalization, Sustaining Families: Comparative Case Studies of Care at Home for Older People With Dementia.

Presentation title: Alzheimer’s Care Hits Home

RickLauber-Photo-NoBookRick Lauber, a former co-caregiver for both his own aging parents, knows about the complexities of caregiving first-hand. Rick has applied his personal experience and additional research into providing valuable and practical resources for prospective, new, and current caregivers. He is the author of Caregiver’s Guide for Canadians and The Successful Caregiver’s Guide (both published by Self-Counsel Press), and has also written extensively on caregiving and senior’s issues for print and on-line markets, in addition to guest spots on radio talk shows and television news programs. Rick also serves, on a volunteer basis, on the Board of Directors for the Alberta Caregivers Association.

For more information, please follow Rick on Twitter at @cdncaregiver or visit www.ricklauber.com

Presentation title: Creating Space at the Table: Recognizing the Rights of People with Dementia

P FehrPhyllis Fehr

Advocate and Ontario Dementia Advisory Group board member

Phyllis Fehr was given a working diagnosis of early-onset Alzheimer's along with Lewy Body dementia at the age of 53. Phyllis promotes the abilities of people living with dementia by advocating for people living with this disease as an Ontario Dementia Advisory board member with a focus on government policy, and also on the national level. Phyllis is on a number of boards and steering committees, including membership on the Advisory Group for the Ontario Dementia strategy and the Early Stage Working Group. She is an active board member for several organizations including the Canadian Dementia Priority steering committee, and a valued volunteer at her local Alzheimer Society. Phyllis regularly speaks at a variety of events from a lived experience perspective, educating about stigma of dementia.

MB Wighton
Mary Beth Wighton

Advocate and Ontario Dementia Advisory Group board member

Mary Beth Wighton was diagnosed with probable frontotemporal dementia in 2012, at the age of 45. She is an advocate for people living with dementia from the local to international level. Mary Beth promotes and uses technology such as video conferencing to involve people with dementia who may be challenged by issues like transportation and anxiety. She is a founding member of the Ontario Dementia Advisory Group (ODAG), which focuses on government policy, education and challenging stigma. In addition, she is a member of the Advisory Group for the development of Ontario's dementia strategy and its Moderate Stage working group. Mary Beth is a member of the newly formed Dementia Friendly Communities Steering Committee led by the Alzheimer Society of Ontario. Furthermore, she plays an active part of a member of the Advisory Committee for Schlegel Villages Dementia Program Development. In 2016, she joined forces with individuals from the United States to form a new LGBTQ peer support group using video conferencing.

E WiersmaElaine Wiersma
Associate Professor, Centre for Education and Research on Aging & Health, Lakehead University

Elaine is an Associate Professor and researcher with the Centre for Education and Research on Aging & Health at Lakehead University. Having spent many years working with older adults in practice and research, particularly individuals with dementia, Elaine’s research aims to tell people’s stories in ways that challenge the stereotypes and misconceptions about people with dementia. Advocacy, inclusion, and rights form the fundamental values underlying her work with people with dementia, and she considers herself privileged to partner with people with dementia as part of her work. Using critical qualitative methodologies, her research spans community and long-term care, exploring inclusion, aging and dementia care, contexts of rural and northern communities, and other quality of life issues.

1.Alzheimer’s Care Hits Home
Rick Lauber
2.Care at Home for a Family Member with Dementia: A Discussion of Research in Progress
Christine Ceci
3.Creating Space at the Table: Recognizing the Rights of People with Dementia
Phyllis Fehr, Mary Beth Wighton, and Elaine Wiersma
Questions and Discussion
Closing Remarks

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